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PRIVACY NOTICE

Data for the Common Good (D4CG) is a research program operated by the University of Chicago. This “Privacy Notice” will explain how our organization collects, uses, stores, and protects the personal data we collect from you when you visit our websites. This Privacy Notice applies to our website, https://commons.cri.uchicago.edu/, and any other websites or platforms that we control. This Privacy Notice does not apply to other University offices and functions that have separate privacy policies or privacy notices. If you would like to know more about how another University office or function uses personal information, please contact that office or function directly.

What data do we collect?

  • Name
  • E-mail address
  • Institutional affiliation
  • User ID / Login
  • IP address (a unique identifier assigned to every networked computer)
  • Operating system and information about the browser used when visiting our sites
  • Date and time of your visit
  • Pages in the PCDC website and data portal that you visited
  • Address of the website that connected you to the PCDC
  • Cohort search terms
  • Professional and biographical information
  • Contact information
  • Newsletter access statistics
  • Event registration/attendance information
  • Information you include when e-mailing the PCDC support and operational teams

Our current platforms

How do we collect your data?

You directly provide the D4CG with most of the data we collect. We collect data and process data when you:

  • Create a User ID for the PCDC Data Portal or GEARBOx
  • Log on and use the PCDC Data Portal or GEARBOx
  • E-mail a support request
  • Interact with the D4CG website, platforms, online applications, and internet‐connected services
  • Register for or attend a D4CG event

D4CG may also receive your data indirectly from:

  • Publicly-available sources
  • Your colleagues may provide your personal information to us

How will we use your data?

We may share or disclose your personal information as follows:

  • Operation of the PCDC and D4CG Services: D4CG may use your personal information to operate D4CG services and platforms, correspond with you regarding your use of the D4CG platforms, and send you information about D4CG activities in which you are involved or have expressed interest.
  • Service Providers: D4CG uses third parties to support our operations. In such cases, we may share your information with such parties.
  • Required by Law: D4CG may share your information with third parties to the extent we are required to do so by law, court order, or subpoena.
  • De-Identified and Aggregate Information: D4CG may use and disclose information about our users in de-identified or aggregate form without limitation.

How do we store your data?

D4CG and its platforms are located in the United States or the European Union. Any personal information the D4CG collects or retains about you will be stored and used in the United States or the European Union. D4CG safeguards users’ personal information according to existing policies with respect to privacy and data safeguarding standards. D4CG will retain data collected from users until the purpose of which such data was collected is no longer applicable.

Information and updates

D4CG would like to send you updates about D4CG activities and data in which you have expressed interest or that we think you might like. These updates include quarterly newsletters and annual reports. You may opt out of these updates and e-mails from D4CG by sending an e-mail to pcdc_privacy@lists.uchicago.edu.

What are your data protection rights?

D4CG would like to make sure you are fully aware of all of your data protection rights.

Every user is entitled to the following:

  • The right to access - You have the right to request D4CG provide copies of your personal data. We may charge you a small fee for this service.
  • The right to rectification - You have the right to request that D4CG correct any information you believe is inaccurate. You also have the right to request that D4CG complete information you believe is incomplete.
  • The right to erasure - You have the right to request that D4CG erase your personal data, under certain conditions.
  • The right to restrict processing - You have the right to request that D4CG restrict the processing of your personal data, under certain conditions.
  • The right to object to processing - You have the right to object to D4CG’s processing of your personal data, under certain conditions.
  • The right to data portability - You have the right to request that D4CG transfer the data that we have collected to another organization, or directly to you, under certain conditions.
  • If you make a request, we have one month to respond to you. D4CG will make a good-faith effort to honor all requests. Under certain circumstances, D4CG may be required to retain personal data due to contractual or legal obligations.
  • If you would like to exercise any of these rights, please contact us:
    • E-mail us at pcdc_privacy@lists.uchicago.edu
    • Call us at +1 773-834-8198

    • Or write to us:

      Data for the Common Good
      University of Chicago
      Department of Pediatrics
      900 East 57th Street
      Chicago, Illinois 60637

What are cookies?

Cookies are text files placed on your computer to collect standard Internet log information and visitor behavior information. When you visit our websites, we may collect information from you automatically through cookies or similar technology. For further information, visit https://www.allaboutcookies.org/

How do we use cookies?

D4CG uses cookies in a range of ways to improve your experiences on our website, including:

  • Enabling web analytics reporting tools to differentiate between new and returning D4CG visitors
  • Understanding how you use our website

What types of cookies do we use?

There are a number of different types of cookies; however, our website uses:

  • Persistent cookies to enable web analytics reporting tools to differentiate between new and returning D4CG visitors. Persistent cookies remain on your computer between visits to the D4CG until they expire or are removed by you.
  • Functionality cookies so that we recognize you on our website and remember your previously selected preferences. These could include what language you prefer and what location you are in. A mix of first-party and third-party cookies are used.

How to manage cookies

If you do not wish to have persistent cookies placed on your computer, you can disable them using your browser. If you opt out of persistent cookies, you will still have access to information and resources at the D4CG, but some application functionality may be lost.

Privacy policies of other websites

The D4CG website contains links to other websites. Our privacy policy applies only to our website, so if you click on a link to another website, you should read their privacy policy.

Changes to our privacy policy

D4CG keeps its privacy policy under regular review and places any updates on this web page. This privacy policy was last updated on 22 June 2026.

How to contact us

If you have any questions about the D4CG privacy policy or the data we hold about you, or if you would like to exercise one of your data protection rights, please do not hesitate to contact us.

  • E-mail us at pcdc_privacy@lists.uchicago.edu
  • Call us at +1 773-834-8198

  • Or write to us:

    Data for the Common Good
    University of Chicago
    Department of Pediatrics
    900 East 57th Street
    Chicago, Illinois 60637

Remedies and right to file a complaint

Some personal information collected by D4CG may be covered by the European Union’s General Data Protection Regulation (GDPR) or national laws in the European Union. In such jurisdictions, if you believe your privacy rights under the GDPR have been violated, you may file a complaint with the UK Information Commissioner’s Office. For information on filing a complaint, please visit: https://ico.org.uk/make-a-complaint/.

Last updated: June 22, 2026