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Acceptable Use Policy: Pediatric Cancer Data Commons

This Acceptable Use Policy (this “Policy”) outlines acceptable and unacceptable uses of the Pediatric Cancer Data Commons (“PCDC”) website (the “Website”), including data exploration tools (“analytics tools”). By using the Website, users agree to abide by this Policy, which may be updated from time-to-time.

Acceptable uses of the Website are expressly encouraged, and unacceptable uses are prohibited. Access may be revoked at the sole discretion of the PCDC for users suspected or proven to have engaged in unacceptable use.

Acceptable uses include:

  • Determination of feasibility for proposed research studies (e.g., calculating sample size and statistical power)
  • Early hypothesis exploration following generally-acceptable statistical principles, as outlined in the PCDC Statistical Manual.

Unacceptable uses include:

  • Indiscriminate hypothesis testing (i.e., “p-hacking”) and other analysis methods that do not follow generally-accepted statistical principles
  • Attempting to derive individual patient-level data or re-identify patients
  • Use of automated methods (e.g., scripts) to explore or export data
  • Disseminating data or results without express permission from the PCDC
  • Use for commercial purposes
  • Any other unacceptable uses outlined in the PCDC Statistical Manual.
Adopted 18 May 2022